Well, as you can see from the images above there hasn't been much growth from the cyst or tumour, GOOD NEWS but as my NS said "there has obliviously been some deterioration because of my latest loss of function". Although it doesn't show up in the scans, it just could be due to the long term effects of the Radiation, Scoliosis, Kyphoscoliosis and Atrophy.
Unfortunately or fortunate, my NS doesn't think it's ever likely that any surgery would help. He maintains that it's too risky and even if it where possible for any surgery, it wouldn't necessarily stop my progression because of all these other factors mentioned above. I could end up being the very thing that we are trying to prevent, quadriplegia.